Children's Tumor Foundation

DESCRIPTION

Neurofibromatosis causes non cancerous tumors to grow on nerve endings of the body. These can lead to various complications, and affects people in varying degrees. It can cause speech impediments, bone abnormalities, learning disabilities, physical delays and in very rare cases the tumors can become malignant.

Neurofibromatosis is more common than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined, but it is far less known than any of them.

There are 3 major types of NF:
NF type 1, also known as von Recklinghausen NF or Peripheral NF, affects 1 in 3,000 people.
NF type 2, also known as Bilateral Acoustic NF (BAN), affects 1 in 25,000 people.
Schwannomatosis, a rare form of NF that has only recently been recognized and appears to affect around 1 in 40,000 people.

The Mission

The Children's Tumor Foundation is a non-profit medical foundation, dedicated to improving the health and well being of individuals and families affected by Neurofibromatosis (NF).

- Encourage and support research and the development of treatments and cures for neurofibromatosis types 1 and 2, schwannomatosis, and related disorders (hereafter collectively referred to as "NF");
- Support persons with NF, their families, and caregivers by providing thorough, accurate, current, and readily accessible information;
- Assist in the development of clinical centers, best practices, and other patient support mechanisms (but not including direct medical care) to create better access to quality healthcare for affected individuals; and,
- Expand public awareness of NF to promote earlier and accurate diagnoses by the medical community, increase the non-affected population's understanding of the challenges facing people with NF, and encourage financial and other forms of support from public and private sources.

For anyone wondering, here is the breakdown of where the money goes:
58% for Research and Medical
22% for Public Education and Patient Support
11% for Fundraising
9% for Support
www.ctf.org/About-the-Foundation/Our-Progress-Landing.html

I wanted to start this cause because I have Neurofibromatosis type 1, and I personally know several people with the condition as well and a few of them have it much worse than me.

EDIT: I have reached my final goal of $250! Thanks everyone! :) If people still end up donating more, I'll be sure to withdraw after another $25. :)

DISCUSSION ( 11 COMMENTS )

1 2
GMyea 2014-01-04 02:34:37
Who will donate?
1 2

Manager



saturnblkg

Users Donated


$282.33

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Mioakiyamafanboy
Dec 16, 2013
$56

iMario999
May 07, 2014
$55.01

tredog65
Feb 17, 2014
$22.50

Azur3Matz
Mar 25, 2014
$17

shadowfax81
Jun 01, 2016
$14.85

triheadedmonkey
Apr 30, 2014
$14.14

hunter420
Dec 16, 2013
$13

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Mar 05, 2014
$9.80

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Aug 10, 2015
$5.50

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Jan 30, 2014
$5.50

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Jul 08, 2014
$5

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May 01, 2014
$5

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May 03, 2014
$4

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Sep 18, 2014
$3.50

ajfortner
Aug 11, 2014
$3.38

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Sep 28, 2014
$3

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Sep 28, 2014
$3

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May 08, 2014
$3

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Jul 29, 2015
$2.87

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Mar 16, 2015
$2.40

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Sep 28, 2014
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Dec 24, 2013
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May 03, 2014
$1.35

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Jan 14, 2014
$1.25

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Aug 27, 2018
$1

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Mar 21, 2015
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Nov 25, 2014
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